David and Mandy's story

David and Mandy Nixon live in Oxfordshire.  Mandy is 60 and was diagnosed with frontotemporal dementia 18 months ago.    David shares their story…

I don’t know how I would have coped without the support I get at YoungDementia UK’s events and groups.

Around five years ago Mandy started struggling at work, and with hindsight we realise that was the start of her dementia symptoms. When we receive the diagnosis three years later, we were bewildered and didn’t know what to do next.

We attend YoungDementia UK’s monthly Supper Club, Coffee & Chat meet ups and Walk & Talk events when we can.  We decided when Mandy was diagnosed that we would enjoy ourselves as much as we can and not have any regrets of ‘we wish we had done that’, so take frequent holidays.  Mandy is visited each week by Jenny, a YoungDementia UK support worker and they go out together and I get three hours respite.  

The best support for me though is the monthly support group for family members of people with behavioural variant frontotemporal dementia (bvFTD), the form of dementia that Mandy has. It has enabled us to associate with other people with FTD.  They know what you are going through and understand your challenges.  We help each other and sharing with the group relieves our anxiety and tension.

We live with dementia day after day, after day, after day.  I find it really hard with limited respite and Mandy gets lonely.  I don’t know how I would have coped without the support I get from YoungDementia UK’s events and groups.

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David and Mandy have also made a very special pledge.  To find out more about how leaving a gift to YoungDementia UK in your Will can help us ensure no family faces this condition alone please click here.

We are leaving a gift in our Will to YoungDementia UK because after leaving a substantial sum for our family, we feel the rest should go to a cause close to our hearts.  We want our money to go to improving the quality of life for both people living with dementia and those caring for people living with dementia, especially when it strikes at such a young age. 

- David and Mandy Nixon

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