If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
East Anglia and Central. Tel 01223 813894
Norwich. Tel 01603 763517. They also a dementia advice and support service helpline which is staffed by Dementia Support Workers from 9.00am to 5.00pm, Monday to Friday. Tel 01603 763556.
Carers Matter Norfolk
Norwich, Norfolk. Tel 0800 083 1148. Email firstname.lastname@example.org
Carers Matter Norfolk is the countywide service funded by Norfolk County Council and the NHS to provide support to unpaid carers. All services are free and available to people aged 16+ caring for someone aged 18+. Support is available to those caring for someone living in Norfolk, whether the carer lives in the county or elsewhere (caring at a distance). Services include a confidential advice line, 1 to 1 support and education and training. Download a leaflet about their services here.
North Norfolk. Tel 01603 763556
Dementia support for people of all ages with dementia and their carers.
Suffolk. Tel 08081 688 000
Can offer support to people under 65 years old with a dementia diagnosis or memory concerns, as well as to their family members / carer. They can provide practical information and support through your journey, empowering you to make your own choices and decisions to live well. Self or professional referrals accepted via helpline or email.
Suffolk Young Dementia Network
Suffolk. Tel 08081 688 000 or 07975 235416
A supportive network for under 65's living with dementia. Suffolk Young Dementia Network is great to link up with other young people living with dementia, support yourself and others and share information and support families of those with young onset dementia. Don't like groups? Get in touch and they can connect you in different ways!
Young onset dementia group
Norfolk. Tel 01603 763556 or email Cheryl.Day@alzheimers.org.uk
A monthly peer support group for people from across Norfolk who are aged under 65; there are also additional social activities and outings. A referral is required and a waiting list is currently in operation. Please contact the Norfolk helpline tel 01603 763556 for information about how to access the group.
Young onset dementia service
Peterborough, Cambridge. Tel 01733 893853
Offers support to people under 65 years who have a primary diagnosis of dementia, and their carers. For information about the Dementia Carers Support Service (not young onset specific), click here.