If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
East Anglia and Central. Tel 01223 813894
Norwich. Tel 01603 763517. They also a dementia advice and support service helpline which is staffed by Dementia Support Workers from 9.00am to 5.00pm, Monday to Friday. Tel 01603 763556.
Carers Matter Norfolk
Norwich, Norfolk. Tel 0800 083 1148. Email email@example.com
Carers Matter Norfolk is the countywide service funded by Norfolk County Council and the NHS to provide support to unpaid carers. All services are free and available to people aged 16+ caring for someone aged 18+. Support is available to those caring for someone living in Norfolk, whether the carer lives in the county or elsewhere (caring at a distance). Services include a confidential advice line, 1 to 1 support and education and training. Download a leaflet about their services here.
Young onset dementia group
Norfolk. Tel 01603 763556 or email Cheryl.Day@alzheimers.org.uk
A monthly peer support group for people from across Norfolk who are aged under 65; there are also additional social activities and outings. A referral is required and a waiting list is currently in operation. Please contact the Norfolk helpline tel 01603 763556 for information about how to access the group.
Young onset dementia service
Peterborough, Cambridge. Tel 01733 893853
Offers support to people under 65 years who have a primary diagnosis of dementia, and their carers. For information about the Dementia Carers Support Service (not young onset specific), click here.