If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
Chesterfield Walking Group
Chesterfield. Tel 01246 274812
The young onset walking group was set up in October 2017. The group runs every Tuesday 9.30-3.00pm and is based at Winster Court, Newland Dale, Stonegravels, Chesterfield, S41 7QJ.
Derby Young Dementia Group
Run by Making Space, tel 01332 497640, email Derbycity.email@example.com
The meetings take place at Elvaston Castle and Country Park on the first Saturday of the month from 10.00am-midday. The key aim is to create a support network of understanding and likeminded, sociable people who are under 65 with dementia.
Freshers Young Onset Cafes
Meets at Miss Poppy's Coffee Shop on the first Thursday of the month, 10.00am-midday. The group provides a relaxed, social get-together for people with young onset dementia, Parkinson's and other neurological conditions.
Young Dementia Herefordshire
Herefordshire. Tel 01981 540653
A group run by and for people with young onset dementia and their families. The aim is to support each other - including family members with practical information, signposting and emotional support. An Admiral Nurse also regularly drops into the sessions to provide support. Currently meeting on the last Thursday of the month, 10.30am-12.30pm at the Courtyard Theatre in Hereford city centre, in the room behind reception.
Leicestershire Early Onset
Braunstone. Tel 0116 231 6921 or email firstname.lastname@example.org
An activity group for the family members / carers of people who are living with young onset dementia.
The Dementia Dare Devils
Braunstone. Tel 0116 231 6921 or email email@example.com
A peer support group that gives you the opportunity to meet with others who understand some of what you are going through. Run by a facilitator, the sessions offer a chance for people affected by dementia to ask questions, get information and share experiences in a safe and supportive environment.
Young Onset Dementa App
A resource developed by Leicestershire Partnership NHS Trust for younger people who have been diagnosed with dementia. It is a digital 'app' which can be downloaded free of charge on to a mobile phone or tablet computer. It brings together up to date information, advice, and inspiration from others who have the condition.
Young Onset Dementia Group
Markfield, Leicestershire. Tel 01530 244914
Meeting on the last Thursday of the month, 1.30pm to 3.30pm at the Shuttlewood Clarke Foundation. A free social group for people under 70 years of age with young onset dementia, their partners, friends, carers and PAs to enjoy. Chat, laughter, support and advice along with activities such as kurling, skittles, table tennis and crafts.
North & North East Lincolnshire Dementia Adviser Service
North and North East Lincolnshire. Tel 01472 359247 or Referrals_NELincs@alzheimers.org.uk
Supporting people of all ages with person centred, tailored advice, support and guidance. The dementia adviser team work across the whole of North and North East Lincolnshire.
Inspired Equine Assisted Learning
Fosdyke, nr Boston, Lincs Tel 07729 909186
Equine assisted learning drop in sessions for people in the early stages of dementia and their carers. Third Thursday of the month, 10am-midday.
The Square Hole Club
South Lincolnshire. Tel 01778 426756
Activity group for people with young onset that meets on the 2nd and 4th Thursday of each month.
Northamptonshire. Tel 01604 893559
Social / activity group for young people with dementia, their carers and family. Meets on the last Tuesday of the month, 5-7pm. Download a flyer giving more details about the group here. You can visit their Facebook page here.
Younger People's Dementia Service
Northamptonshire. Tel 01933 415511
Team carry out memory assessments, longer term follow up, hospital liaison and engage in awareness raising of young onset dementia.
Working Age Dementia Group
Sutton in Ashfield. Tel 07889 305361 or email Rebeccaphillips@everyoneactive.com
An informal group for people of working age who are living with dementia, their families and / or carers. The group meets in the reception area of Lammas Leisure Centre and enjoy tea / coffee, music and indoor bowls for free. The group runs on Tuesdays between 1.30-3.30pm and is fundraising for music therapy sessions and trips out. The leisure centre is serviced by regular bus routes and disabled parking is available.
Working Age Dementia Team
Nottinghamshire. Tel 01623 785431
The Working Age Dementia Service provides diagnostic and post diagnostic services to people under 65 years of age in Nottinghamshire. The team offers a specialist multi-disciplinary assessment and diagnostic service and a range of individual and group-based treatments to anyone living with young onset dementia, with an emphasis on maintaining skills, living well and promoting peer support. Download leaflet here.
Shropshire. Tel 01743 341800 or email firstname.lastname@example.org
Range of dementia services including Art Therapy classes for younger people with dementia.
Shropshire Young Onset Dementia Service
Shrewsbury. Tel 01743 210000
Young onset assessment, treatment and support services are based at the Redwoods Centre, Somerby Drive, Bicton Heath, Shrewsbury, SY3 8DS.
Dementia Navigator Service
Warwickshire. 01926 888899 or email:email@example.com
An all ages service providing information, guidance and practical and emotinal support whether you have dementia or are caring for someone with the condition. Service includes signposting to local services and organisations. Support and information can be provided over the telephone or, through a face to face meetings at your home or other suitable location.
The Young Ones Dementia Cafe
Warwick. Tel 01926 888899.
The café operates on the 3rd Tuesday of the month, 11 - I pm at Warwick Space, Coten End, Warwick, CV34 4NU. Download their calendar of events here.
Barras Court Day Centre Day Care
Coventry. Tel 024 7665 2602
This service offers 8 places on one day per week for younger people with dementia. Open Monday to Friday, 9am-5pm.
JW Care - Young onset dementia movie & pizza group
Cradley Heath. Tel 07970 734550 or email firstname.lastname@example.org
Meets every Wednesday at 11am at Old Hill Cricket Club for freshly made pizza, a movie on a giant cinema TV, free teas and coffees and support for family members / carers.
Pathways 4 Life
Walsall, West Midlands. Tel 07710 095642 or EMAIL Stephanie.email@example.com
A weekly support group for individuals who are living with young onset dementia, families, friends and carers. The group is provided my Pathways 4 Life - a dementia support service based in Walsall.
Rare Dementia Service
Formerly the Working Age Dementia Service, it provides support to people aged under 65.
Sandwell Young Onset Dementia Activity & Support Group
Sandwell, West Bromwich. Tel 0121 543 4295
Meets fortnightly at West Bromwich Baptist Church. Every group is run by Occupational Therapists and their main focus is encouraging participation in meaningful activities and providing advice and support to help people live well with dementia. Family members / carers are very welcome to attend.
Time 4 Care
Dudley. Tel 01384 833082
Day centre providing day and home care for adults 18 and over specialising in young onset and rare dementias including Korsakoff's, Pick's Disease (FTD) and leukodystrophy with spheroids, Alzheimer's and learning disabilities . A transport service is available.
Young Onset Dementia Service
Coventry. Tel: 024 7696 8041
This multidisciplinary team provides a person-centred needs-led long-term service to people living with dementia of adult working age (under the age of 65) in Coventry and their carers/families. Based at Caludon Centre, Walsgrave, Coventry.
Younger Persons Activity Group
Birmingham. Tel 07827 940 844
Group meets on the second Tuesday of every month at The Kenrick Centre, Harborne between 11.30-2.30pm and includes entertainment and a light lunch. It is for younger people with dementia and their carers or people can come individually should they wish to.
Al's Cafe (run by the Alzheimer's Society)
Evesham, Kidderminster, Malvern, Redditch & Worcester. Tel 01905 621 868
Meets once a month in each location. Specifically for people who are diagnosed with dementia under the age of 65.
Is a service based in Worcester which supports people with young onset dementia on a one to one basis. A mentor supports people to continue with, and discover enjoyable interests and activities. This service currently provides up to 6 hours support a month. It is delivered by Onside Advocacy
A monthly evening meeting, held in Ombersley 7pm - 9pm, for younger people living with dementia and their families. It is a service which offers education and information. For further information please see their leaflet here and or visit their Service Showcase page here.
Dementia Voice Worcester
Worcestershire. Tel 01562 828894 or email firstname.lastname@example.org
The group meets on the first Thursday of the month at the Community Room at Waitrose supermarket in Worcester and has been involved in talks, walks, feedback and research. For further information please visit their Service Showcase page here.
Early Intervention Dementia Service
Kidderminster General Hospital. Tel: 01562 828815
Worcestershire Health & Care NHS Trust Young Onset Dementia website
Includes a listing of local services and support. You can also find out more about their range of services in the Service showcase section of our website, click here.
Worcester Warriors - Tackling Dementia Sports Cafe
Worcester. Tel 01905 454183
The Tackling Dementia Sports Cafe is a free weekly group free that runs every Wednesday 10.30am-midday at the Worcester Warriors Sixways Stadium. It caters for people living with dementia their family, friends and carers and whilst not specifically a young onset group, the group is attended by younger people and is very active, with members engaging in indoor sports activities in a fun, welcoming environment.