If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Chesterfield Walking Group
Chesterfield. Tel 01246 274812
The young onset walking group was set up in October 2017. The group runs every Tuesday 9.30-3.00pm and is based at Winster Court, Newland Dale, Stonegravels, Chesterfield, S41 7QJ.
Derby Young Dementia Group
Run by Making Space, tel 01332 497640, email Derbycity.firstname.lastname@example.org
The meetings take place at Elvaston Castle and Country Park on the first Saturday of the month from 10.00am-midday. The key aim is to create a support network of understanding and likeminded, sociable people who are under 65 with dementia.
Freshers Young Onset Cafes
Chesterfield. Tel 07856 933003
Meets at Miss Poppy's Coffee Shop on the first Thursday of the month, 10.00am-midday. The group provides a relaxed, social get-together for people with young onset dementia, Parkinson's and other neurological conditions.
Young Dementia Herefordshire
Herefordshire. Tel 01981 540653 or email email@example.com
A group run by and for people with young onset dementia and their families. The aim is to support each other - including family members with practical information, signposting and emotional support. An Admiral Nurse also regularly drops into the sessions to provide support. Currently meeting on the last Thursday of the month, 10.30am-12.30pm at the Courtyard Theatre in Hereford city centre, in the room behind reception.
Leicestershire Early Onset
Braunstone. Tel 0116 231 6921 or email firstname.lastname@example.org
An activity group for the family members / carers of people who are living with young onset dementia.
The Dementia Dare Devils
Braunstone. Tel 0116 231 6921 or email email@example.com
A peer support group that gives you the opportunity to meet with others who understand some of what you are going through. Run by a facilitator, the sessions offer a chance for people affected by dementia to ask questions, get information and share experiences in a safe and supportive environment.
Young Onset Dementia App
A resource developed by Leicestershire Partnership NHS Trust for younger people who have been diagnosed with dementia. It is a digital 'app' which can be downloaded free of charge on to a mobile phone or tablet computer. It brings together up to date information, advice, and inspiration from others who have the condition.
Young Onset Dementia Group
Markfield, Leicestershire. Tel 01530 244914 or email firstname.lastname@example.org
Meeting on the last Thursday of the month, 1.30pm to 3.30pm at the Shuttlewood Clarke Foundation. A free social group for people under 70 years of age with young onset dementia, their partners, friends, carers and PAs to enjoy. Chat, laughter, support and advice along with activities such as kurling, skittles, table tennis and crafts. Unfortunately, the face to face groups are currently cancelled due to the COVID pandemic, but weekly zoom meetings are being held.
Focus on Dementia
North and North East Lincolnshire. Tel 01472 359247 or email referrals_NELincs@alzheimers.org.uk
The Alzheimer’s Society run a focus group for younger people living with dementia across North and North East Lincolnshire. The group is held every fourth Tuesday of the month, 2pm-3pm. Each month, they discuss a different topic and gather people’s experiences and feedback in order to inform local and national services and influence positive change. The group is held via Zoom, please click here for more information.
North & North East Lincolnshire Dementia Adviser Service
North and North East Lincolnshire. Tel 01472 359247 or Referrals_NELincs@alzheimers.org.uk
Supporting people of all ages with person centred, tailored advice, support and guidance. The dementia adviser team work across the whole of North and North East Lincolnshire.
Inspired Equine Assisted Learning
Fosdyke, nr Boston, Lincs Tel 07729 909186
Equine assisted learning drop in sessions for people in the early stages of dementia and their carers. Third Thursday of the month, 10am-midday.
The Square Hole Club
South Lincolnshire. Tel 01778 426756
Activity group for people with young onset that meets on the 2nd and 4th Thursday of each month.
Northamptonshire. Tel 01604 893559 or email email@example.com
Social / activity group for young people with dementia, their carers and family. Meets on the last Tuesday of the month, 5-7pm. You can visit their Facebook page here. The group is currently running on zoom until they are able to resume face to face groups.
Younger People's Dementia Service
Northamptonshire. Tel 01933 415511
The Younger Persons with Dementia Team team is a countywide service that consists of nurses, occupational therapists, support workers, and admin. The team aims to provide specialist assessment, timely diagnosis, and support for adults under the age of 65 with early-onset dementia. Assessments take place either within clinics or service user’s homes.
Working Age Dementia Group
Sutton in Ashfield. Tel 07889 305361 or email Rebeccaphillips@everyoneactive.com
An informal group for people of working age who are living with dementia, their families and / or carers. The group meets in the reception area of Lammas Leisure Centre and enjoy tea / coffee, music and indoor bowls for free. The group runs on Tuesdays between 1.30-3.30pm and is fundraising for music therapy sessions and trips out. The leisure centre is serviced by regular bus routes and disabled parking is available.
Working Age Dementia Team
Nottinghamshire. Tel 01623 785431
The Working Age Dementia Service provides diagnostic and post diagnostic services to people under 65 years of age in Nottinghamshire. The team offers a specialist multi-disciplinary assessment and diagnostic service and a range of individual and group-based treatments to anyone living with young onset dementia, with an emphasis on maintaining skills, living well and promoting peer support. Download leaflet here.
Shropshire. Tel 01743 341800 or email firstname.lastname@example.org
Range of dementia services including Art Therapy classes for younger people with dementia.
Shropshire Young Onset Dementia Service
Shrewsbury. Tel 01743 210000
Young onset assessment, treatment and support services are based at the Redwoods Centre, Somerby Drive, Bicton Heath, Shrewsbury, SY3 8DS.
Warwickshire. Tel 0333 150 3456 or email email@example.com
Dementia Connect, from Alzheimer’s Society, is a new personalised support service for anyone with dementia, their carers, families and friends. Whilst not young onset dementia specific, they can connect you to a whole range of dementia support, by phone, online and face to face. It’s free, easy to access, and puts you in touch with their dementia advisers who will offer you the support you need, from local help to telephone and online advice.
JW Care - Young onset dementia movie & pizza group
Cradley Heath. Tel 07970 734550 or email firstname.lastname@example.org
Meets every Wednesday at 11am at Old Hill Cricket Club for freshly made pizza, a movie on a giant cinema TV, free teas and coffees and support for family members / carers.
Pathways 4 Life
Walsall, West Midlands. Tel 07710 095642 or EMAIL Stephanie.email@example.com
A weekly support group for individuals who are living with young onset dementia, families, friends and carers. The group is provided my Pathways 4 Life - a dementia support service based in Walsall.
Rare Dementia Service
Birmingham. Tel 0121 301 5455
Formerly the Working Age Dementia Service, it provides support to people aged under 65.
Sandwell Young Onset Dementia Activity & Support Group
Sandwell, West Bromwich. Tel 0121 543 4295
Meets fortnightly at West Bromwich Baptist Church. Every group is run by Occupational Therapists and their main focus is encouraging participation in meaningful activities and providing advice and support to help people live well with dementia. Family members / carers are very welcome to attend.
Time 4 Care
Dudley. Tel 0121 643 9886 or email firstname.lastname@example.org
Day centre providing day and home care for adults 18 and over specialising in young onset and rare dementias including Korsakoff's, Pick's Disease (FTD) and leukodystrophy with spheroids, Alzheimer's and learning disabilities . A transport service is available.
Young Onset Dementia Service
Coventry. Tel: 024 7696 8041
This multidisciplinary team provides a person-centred needs-led long-term service to people living with dementia of adult working age (under the age of 65) in Coventry and their carers/families. Based at Caludon Centre, Walsgrave, Coventry.
Younger Persons Activity Group
Birmingham. Tel 07827 940 844
Group meets on the second Tuesday of every month at The Kenrick Centre, Harborne between 11.30-2.30pm and includes entertainment and a light lunch. It is for younger people with dementia and their carers or people can come individually should they wish to.
Onside Dementia Support Services
Worcester. Tel 01905 27525 or email email@example.com
Onside provides a range of services to support people living with dementia. Their specialist areas are support for people living with young onset dementia, the provision of peer support and dementia cafes for people of all ages living with dementia.
Worcestershire Health & Care NHS Trust Young Onset Dementia website
Includes a listing of local services and support.
Young Onset Dementia Worcestershire
A website dedicated to young onset dementia information and services in the Worcestershire area.