The Young Dementia Network has developed a GP decision-making guide to aid the recognition of the symptoms of dementia in younger people.
About the GP decision making guide
The Young Dementia Network has worked with GPs to create this guide because accurate and timely diagnosis is an essential part of living as well as possible with young onset dementia. Receiving a diagnosis is a first step towards accessing treatment, support, information and advice to help you and your family adjust to life with dementia. But unfortunately, it currently takes twice as long - on average 4.4 years - for a younger person to receive a diagnosis as it does an older person.
By creating a guide for GPs we aim to raise awareness of young onset dementia and the wide range of issues someone may experience which prompts a visit to their doctor. Because younger people are more likely to have a rarer form of dementia, those issues can include much more than memory loss.
The pilot version of the GP decision making guide was available for GPs to use and comment on from April 2017 untll the end of July 2017. We also recieved feedback from people living with young onset dementia, their family and other professionals who have an interest in the document. We had over 70 responses and this feedback was used to develop the guide to its final stage.
To feedback your thoughts on the GP decision making guide please fill in the short survey here.
Who was involved in creating the pilot version of the GP decision-making tool?
We would like to thank the following for their contribution
- Young Dementia Network Steering Group and work stream members
- Rare Dementia Support group members
- YoungDementia UK service members
- The Forget-Me-Nots, Kent group members
- Dr Jill Rasmussen, Clinical Lead Dementia, and colleagues at the Royal College of GPs
- Dr Martin Thornton
- Dr John West
- Dr Gill Scott
- Lynne Ramsey
- Ashfield Digital & Creative for their support in designing the tool.
Further information for GPs
- NICE Dementia Guidance
- Dementia and people with intellectual disabilities, guidance from the British Psychological Society
- Young onset dementia pathway
- Dementia Academy Care Pathway Toolkit
- Frontotemporal Diagnosis Toolkit
- Rare Dementia Support
- Alzheimer's Society overview of rarer forms of dementia
- Memory Service National Accreditation Programme Standards