Meet Young Dementia Network members and find out why they joined
'I was diagnosed with early onset Alzheimer’s this January (2018) and was only give two pieces of paper by the consultant. I have had no information from my GP!
It has been a difficult and long six months, especially as I have depression and chronic fatigue and have had to retire early.
I am interested in Recover and Discovery and joined to learn from the Young Dementia Network website.'
- Jacqui Bingham, Lady living with young onset dementia
'It’s brilliant that the Young Dementia Network has been established as this enables everyone to find out about services around the country, to learn from each other and to consider developments. It’s good to know what works well in other areas. It’s also really helpful having a National Development Manager who we can go to for advice / signposting if we felt advice was needed about a particular issue. Having a helpful website is also an invaluable resource – thank you.'
- Jo Scarle, Young Onset Dementia Development Officer, Worcestershire
'Alzheimer’s and Dementia Support Services Kindred Spirits joined the Network in order to share information about services for younger people living with dementia and to be able to share experiences and good practice examples. It has been useful as it has highlighted all the services available across the country.'
- Sarah Taylor, Alzheimer's and Dementia Support Services, Kent
'The Limes opened in 1996, a project brought about by a forward thinking group of people, who were aware of the lack of provision for people with young onset dementia. Sadly that picture hasn’t changed very much over the years, so I believe it is important to be involved in the Young Dementia Network, as an opportunity to not only increase awareness of young onset dementia but also to highlight what services are available.'
- Jo O'Neill, Day Support Manager Alzheimer's Society, Bristol
'I joined Young Dementia Network to stay up to date with news relating to younger people with dementia. I’m an Occupational Therapist with many years in the field and I have just gone back to university in Coventry to carry out research on the views of younger people with dementia with regards to using smart devices to help with everyday living activities.'
- Nicola McGarvey, Registered Occupational Therapist
'After many years working as a nurse and latterly as a Manager for Alzheimer Scotland I’ve developed a keen interest in promoting living well with Young Onset Dementia. The strength and determination expressed by people both with Young onset dementia and their families has inspired me to commence my own research. I’m currently a lecturer in health and social care as well as carrying out a PhD on Young onset dementia and Social inclusion. The network is great, it provides information on new projects which inspire me in my research and help me to develop new ideas.'
- Alison Beard, Lecturer in Health and Social Care, School of Health and Human Sciences, University of Bolton
If you would like to share your reasons for joining the Network then we would love to hear from you.
Please email firstname.lastname@example.org