Can you help The Angela Project team with ideas for new young onset resources?

The Angela Project was a three-year research study carried out by the universities of Bradford, Northampton, Surrey and UCL, funded by the Alzheimer’s Society, and in partnership with Dementia UK and YoungDementia UK. It was designed to look at how post-diagnostic support for people living with young onset dementia and the accuracy of diagnosis can be improved.

During the study, views were gathered from professionals and over 230 people living with, or caring for, someone with young onset dementia making it the largest study of its kind. 500 sets of case notes were audited and the team talked to commissioners and service providers to understand more about what helped and hindered them in providing young onset dementia services.

The survey also looked at good practice and what needs services that provided good services met, as well as the barriers and facilitators to good practice in post-diagnostic support for younger people.

Now the research is complete, and their key findings and recommendations are known, they want their findings to be put into everyday practice by creating accessible resources for different audiences and uses. Perhaps a care / support plan for the person with young onset dementia to agree with their supporting professionals, or a clinic checklist to ensure your clinic is meeting the best standards in young onset care. What resources or tools would you find useful?

Please send any comments, views or ideas to Clare Mason at c.mason3@bradford.ac.uk or if you prefer, telephone Clare on 07917 751478.

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