If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Beech Unit - Young onset demetnia service
Darlington. Tel 01325 552 014/15
The MHSOP Darlington community team based at West Park Hospital provide a young onset dementia service for all of south Durham, consisting of a community psychiatric nurse and an occupational therapist.
Dementia Advice Service
Gateshead. Tel 0191 478 5100 ext 252
A free, 1 to 1 advice service for people diagnosed with dementia, their relatives and carers. Offers advice around employment, benefits, financial advice, form filling and much more.
Newcastle upon Tyne. Tel 0191 467 0007
Provide a range of nursing, care and support services to people who need assistance to live independently at home, including supporting people with young onset dementia.
Gateshead Younger Dementia Service
Bansham Hospital. Tel 0191 445 6462
Community outreach, assessments and support for people who are under 65 with a dementia diagnosis. Service offering includes a Living well with dementia nine week programme, mindfulness sessions, cognitive stimulation therapy, a ladies group and men's walking group.
Young At Heart
Stockton on Tees. Tel 0191 500 6122 or Email email@example.com
A friendship group for people with dementia and their carers to attend together. Their facebook group can be found here.
Young Onset Dementia Service
North Tyneside. Tel 0191 293 4010 or 0191 293 4056
The service diagnoses and supports younger people under 65 years with dementia. It operates Monday to Friday.
Young Onset Dementia Specialists - Teeside
Stockton, Middlesbrough, Hartlepool, Redcar & Cleveland
Young onset dementia specialists work within the community mental health teams in the above locations. Contact the teams directly for advice on how to access their services via the above link or call 01642 391484 for Stockton CMHT, tel 01642 368930 for Middlesbrough CMHT, tel 01429 803660 for Hartlepool CMHT or contact Cleveland & Redcar's CMHT on tel 01287 612650.
Young Onset Dementia Support group
Thornaby, Stockton-on-Tees. Tel 01642 527363
A support group for those living with young onset dementia and their carers. The group provides an opportunity to meet socially and share experiences. It takes place at the LiveWell Dementia Hub on the last Monday of each month between 1.30-3.00pm.
Younger people with dementia
Newcastle upon Tyne. Tel 0191 246 8723
Integrated community mental health team support for younger people (under 65) with dementia, Monday to Friday, 9am-5pm. Download a leaflet about the service here.
Younger people with dementia team
South of Tyne. Tel 0191 566 5460
The team is a community based service for the diagnosis and management of dementia for people under 65, based at Monkwearmouth Hospital, Monday to Friday, 9am-5pm.
Dementia Advice Centre Newcastle
Newcastle upon Tyne. Tel 0191 217 1323 or Email firstname.lastname@example.org
The Dementia Advice Centre is dementia specialist service for people living on Tyneside looking for appropriate, effective, coordinated support or information about living with dementia.