If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Halton Dementia Community Pathway Service
Halton, Cheshire. Tel 0151 420 8010 or email Lorraine.Dutton@alzheimers.org.uk
Offers support to younger people living with dementia and their carers. Run by the Alzheimer's Society.
Young Onset Support Group
Halton, Runcorn. Tel 01928 580182
Group meets on alternate Monday's from 6.30-8.00pm at Halton Carers Centre, Runcorn.
Bolton Dementia Support
Bolton. Tel 07704 594585 or email email@example.com
Due to Covid-19, they are not currently offering face to face support but are using telephone calls, newsletters, care packages, weekly emails and online groups to offer support and connection. Their groups are not currently young onset specific, but they hope to launch a group for younger people soon.
Early Onset Dementia Dining Club
Salford, Manchester. Tel 0161 703 1071 or email firstname.lastname@example.org
The club aims to bring people living with young onset dementia together, to set up a supportive network that meet in different restaurants of the clubs choosing across Salford. Meets on the first Wednesday of every month, from 6pm-8pm.
Stockport. Tel 0161 716 4531
EDUCATE stands for Early Onset Dementia Cooperative Aiming To Educate. EDUCATE is a group of people living with dementia, who speak in public raise awareness about dementia and deliver training courses. Mixed age group, but many of their members are aged under 65.
In the Same Boat
Wigan. Tel 01942 481301
Takes place on the 1st and 3rd Thursday of the month, between 3.00-5.00pm at Central Park, Montrose Ave, Wigan, WN5 9XT. Bringing together people living with young onset dementia and their families to offer advice, support and access to community activities in Wigan. Run by Wigan Warriors Community Foundation, Wigan Later Life and Memory Service (LLAMS) and the Alzheimer’s Society.
Mount Chapel Champions
Salford. Tel 0161 788 7700 or email email@example.com This Young onset group has adapted due to to the COVID pandemic restrictions. It is now being run every other monday, one group in the morning 10.00 - 12.00 and one group in the afternoon 1.30 - 3.30 pm. There will be two bubbles of six at both the morning and afternoon sessions. The group is held at the Chandos Sports and Social Club, Chandos Grove, Salford, M5 5LJ
Peer Support Group
Rochdale. Tel 07980 095479
A group for people who are living with young onset dementia and their friends, family and carers that offers practical, information sharing and social support. Meets on the third Wednesday of each month between 11.00am and 1.30pm at Hare Hill House, Hare Hill Park, Littleborough, OL15 9HF.
Stockport Young Onset Dementia Team
Offerton, Stockport. Tel 0161 716 4505 Email Team manager, Ruth Chaplin
Multidisciplinary assessment and treatment for people under the age of 65 with a progressive dementia and their families. The aim of the service is to maintain the skills and activities of the person with dementia in their local area.
Walking for Wellness
Stockport and south Manchester. Email firstname.lastname@example.org
Activities and support for people affected by young onset dementia including walks in the countryside, takes place Monday to Friday.
Freshers Young Dementia Cafes
Blackpool, Kendal, Lancaster, Lytham St Annes & Thornton-Cleveleys. Tel 07856 933003
Activity and social groups for people aged 40+ who are living with dementia and other young onset neurological conditions and their partners, friends and family. Visit their website for venues and times for all of their groups.
Lancashire Care NHS Trust
Lancashire Care NHS Trust has developed a leaflet to be given out at the point of diagnosis to people of working age who are affected by dementia with brief information and signposting to groups and services in the area. Click here to download a copy.
Longridge. Tel Joanne or Pam on 07376 034943 or email email@example.com
A sociable get-together for people of working age with dementia or Parkinson's. Meets monthly on the last Tuesday of the month in a café in Longridge.
Young Onset Dementia Social Group
Charnley Fold, Bamber Bridge. Tel 01772 620876
A monthly evening meeting and information hub for people of working age with dementia and their family member / carer. Run by Age Concern.
Age UK Wirral
Tel 0151 653 4404
Early onset dementia project based at the Bradbury Wing. Promoting independence, inclusion and actively encourages younger people living with dementia to retain their life skills.
St Helens. Tel 01744 646833
A new young onset dementia group run with the support of Saints RLFC. Meets at the Totally Wicked stadium in St Helens, once a fortnight on a Wednesday, 11.00am-1.00pm for a social get-together for people living with young onset dementia, their family and friends.
Keystone Support Group
Crosby, Merseyside. Contact Kath Rogers on firstname.lastname@example.org or Jane Stephens on email@example.com
Support group for family members / carers of under 65s with dementia meets the third Tuesday of the month, 2- 3.15pm at All Saints Church Community Hub, L23 9TJ. There is also an evening Keystone Group for carers who work on the 1st Wednesday in the month, 6-7.30pm. Both serve light refreshments and are free of charge, and a memory café on the second Thursday of the month for both cared for and carer at 2-3.30pm.
Merseycare NHS Trust
Southport & Formby. Tel 01704 383034
Operate three regular groups for younger people. Monday - walking group, 11-12.30pm around Southport and Formby. Tuesday - gym group for 1 hour at a local Southport gym 9-10am and 10.30am-12.30pm social group called ‘The Youth Group’ meets at The Life Rooms in Southport, there is also a carers group on alternative Tuesday’s which is a peer support group (open to carers of older people with dementia as well). Every three months - hold a lunch group at a local pub, open to all carers and people with young onset dementia. Attendees must be known to the service, please contact Helen Smith for more information.
Tel 0151 288 6060
Generic services are available to any carer over the age of 18 who resides within the Borough of Sefton and are registered with the Carers Centre.
The Brain Charity
Liverpool. Tel 0151 298 2999
Offers emotional support, social activities and practical help to people affected by any neurological condition, including family, friends and carers. Based in Liverpool city centre, with a drop-in service at The Walton Centre they provide a national information and advice service as well as services based in the local area. Currently running a range of online groups and activities.
The Youth Club
St Helens, Merseyside. Tel 0151 420 8010 or email firstname.lastname@example.org
A new group for people aged under 70 who are living with a diagnosis of dementia and their family members, friends and carers. The group will be developed by its members for its members. The aim of the group is to provide a safe and non-judgmental environment where younger people living with dementia and their carers can meet, talk, have fun, arrange events and if they wish to, share ideas and discuss issues which are currently affecting them.
The Walton Centre NHS Trust
Liverpool. Dementia diagnosis and treatment.