If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Northern Ireland. Tel 028 9066 4100
Dementia helpline and advocacy service, also information, advice and support across Northern Ireland.
Causeway Dementia Support Service
Coleraine. Tel 028 7035 8887
Young people with dementia and their carers - young carer support group meets on the 2nd Monday of every month at 2.30pm in Coleraine Rugby Club, Rugby Avenue, Coleraine.
Tel 028 90686768 or email email@example.com
Dementia NI is an independent group of people living with dementia within Northern Ireland. Group members come together to support each other through friendship and understanding, particularly new members who may have been recently diagnosed. The groups which run throughout Northern Ireland, empower people living with dementia to have a voice, and to remain active and part of their community. The groups raise awareness by telling others what life is like to live with dementia and engage with organisations throughout Northern Ireland, to inform them of how to make their services, policies and practice more suitable for people living with dementia.
Huntington's Disease Association NI
Belfast. Email firstname.lastname@example.org
Huntington's Disease Association NI works throughout Northern Ireland providing support, information, advice and social connections to those living with the impact of Huntington’s Disease. They run regional support groups, provide telephone and face to face advice and support as well opportunities for families to connect through our events and befriending services. They also work closely with medical professionals to advocate for the most effective care for our clients and lobby the Executive for improved and efficient services. We provide training and awareness raising events and keep our members informed of the latest research and medical advances in the quest for effective treatments and ultimately a cure.
Mid Ulster Office - Alzheimer's Society
Maghera. Tel 028 8676 5888
A support group for carers of people with young onset dementia meets on the fourth Friday of every month, 2.00pm-3.00pm in Mitchell Hall, Station Road, Maghera.