Providing support and information

Providing support, information and connection to help those affected by young onset dementia to adapt and live life

Our activity and achievements during 2019...

Our Adapt programme helped educate and inform people about young onset dementia, particularly people who have been newly diagnosed and those who support them.  The programme was delivered in Oxfordshire and we hope this model of support can be replicated in the future in other parts of the UK.   We provided 75 hours of individual support and ran a course, after which 100% felt better supported, 80% felt better informed and 80% felt better connected. 

We also released on our website three new Adapt films in which people with young onset dementia talk from their personal experience about ‘Who and how to tell, ‘Being a parent’ and ‘Employment and keeping active.’

Thanks for yesterday’s group session with carers of loved ones living with frontotemporal dementia…It was truly therapeutic to talk to others in a similar situation. …I do hope this session is repeated on a regular basis as it certainly gave me more strength to cope with the challenges thrown at me every single day of my life.

- David, family member from Oxfordshire 

We ran nine different monthly groups enabling people to meet others in similar circumstances were held at local community venues in Oxfordshire.  These offered a chance to be creative, explore music and lyric writing, enjoy a countryside walk or educate others about young onset dementia.  These events attracted over 440 attendances over the last year.   Our newest group was for people affected by a rare form of dementia known as behavioural-variant frontotemporal dementia.

We provided 5,325 hours of individual support to people with young onset dementia in Oxfordshire, enabling them to enjoy activities that would be otherwise difficult or impossible. 

Our Young Onset Dementia Advisors provided 1932 hours of support.  Of those we surveyed, 84% felt better informed, 74% felt better supported, 86% felt more valued and 79% felt better connected. 

Our online information shared personal stories, information about the condition and signposted local services to 93,500 website visitors.

And finally, we launched a support group in Sheffield.  Members meet monthly and take part in a huge variety of activities from archery to crafting.

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