If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Younger Onset Dementia Activity Group
Luton. Tel 01582 470910
Group for people under 65 on diagnosis, including advice and support for carers and children. Meets on the 3rd Friday of the month at Hope Church Centre, Luton. There is also a social activity group meeting on the 1st Monday of the month.
Alzheimer's Posterior Cortical Atrophy (PCA) Support Group
Wokingham. Email firstname.lastname@example.org This regional group, in partnership with Younger People With Dementia, provides support and information to people living with Posterior Cortical Atrophy (PCA), their families, friends, and carers. Meetings have moved to an online format and everyone is welcome. The next meeting is on Friday, 16 October 2020 from 11:00 am - 12:30 pm.
Crossroads Care - Hazelwood Club
Reading. Tel 0118 945 4209
Provides social day care opportunities for younger people with dementia.
Hazelwood Day Centre
Reading. Tel 0118 960 5959
Provides mental health assessments and ongoing care for people of all ages who have dementia or other mental health conditions such as depression, psychosis and severe anxiety.
Young At Heart Peer Support Group
Maidenhead. Tel 01628 626331
Weekly activity group for people affected by dementia, every Thursday 10.00am-12.30pm.
Younger People with Dementia (Berkshire) CIO
Berkshire, also including Bracknell, Slough and Windsor & Maidenhead. Tel 07500 806385
Provide one to one support and a wide range of daytime activities for younger people with dementia as well as workshops / training and carer support groups.
Carers Bucks - Hazlemere Young Onset Dementia Group
Hazelmere, High Wycombe. Contact via email.
Group for carers of people who have young onset dementia. Meets at 10.30am-12 noon on the second Tuesday of the month.
Milton Keynes Memory Assessment Service
Milton Keynes. Tel 01908 801020
Offers assessment of an individual’s memory, ensuring that if dementia is an issue a diagnosis is given as soon as possible. Following diagnosis they offer support, education, information, group and individual sessions and support for carers.
Young People With Dementia - Milton Keynes
Milton Keynes. Tel 07927 965573 or email email@example.com
Young People With Dementia Milton Keynes is a group for people with young onset dementia (diagnosed before age 69) and their families. They meet (or contact via phone during the pandemic) on a regular basis to socialise, offer mutual support, and do activities. To join the group, refer or find out more, just send an email or leave a text message giving your contact details and they will contact you back.
Essex Dementia Care
Tel 01245 363789 or email firstname.lastname@example.org
Offers one to one support for people aged under 65, plus have activity centres (not under 65 specific) in Braintree, Chelmsford and surrounding areas. Essex Dementia Care believes maintaining positive engagement with activity is critical for good health and well-being. We offer an active and stimulating environment which can accommodate the additional needs of a person living with Dementia.
Basildon. Tel 01702 546476
A day centre facility in Basildon for people between 40 and 70 years of age, living with all types of dementia, operates week days from 8.30am-4.30pm. The day centre offers a door to door service in south-east Essex, bringing members to the day centre where they can enjoy mentally, physically and socially stimulating activities. They also offer a free advocacy service and carers support groups for families and carers. They cover Southend and surrounding areas, Castle Point and Rochford, Rayleigh, Basildon, Wickford, Brentwood, Billericay and Thurrock. Click here to download their leaflet.
Wessex Cognitive Disorders Service
Southampton. Tel 023 8120 8998
The team provide specialist diagnosis and treatment for people with cognitive disorders, with a focus on complex, younger-onset and atypical dementias. They conduct research trials in a range of neurodegenerative conditions including Alzheimer's disease, frontotemporal dementia and Huntington's disease.
The Saturday Club
Cosham. Tel 023 928 92035 or email email@example.com
Young onset activity group for people under the age of 65 online via Zoom and takes place on the 1st and 3rd Saturday of the month.
Age UK Young Onset Dementia Support & Groups
County-wide support and groups. Tel 0300 123 4044.
Age UK has a Young Onset Dementia Support Worker who can provide information and advice, group activities and one to one support for people aged under 65 who are living with dementia or cognitive impairment.
Hatfield - Carers support group. Meets on the 2nd and 4th Monday of the month, 3.30pm-5.30pm
Hemel Hempstead - 3rd Tuesday of the month, 2.00pm-4.00pm
Hertford - 2nd Wednesday of the month, 10.00am-12.00pm
Letchworth - 1st and 3rd Friday of the month, 11.00am-1.00pm
Watford - last Thursday of the month, 11.00am-1.00pm
There is also an activities group that meets on the 3rd Thursday of the month, between 10.00am-12.30pm for an outing or entertainment.
Hertfordshire County Council
Peer support groups and activity groups for people with young onset dementia and their carers.
Turning Point - Herfordshire Carers Support Service
Watford, Three Rivers & Hertsmere. Tel 01438 724995
Service provides short periods of respite to carers of people with young onset dementia.
Young onset dementia support group
West Herfordshire. Tel 01923 894222
Tuesday-Friday, 9am-5pm, an opportunity for carers to meet others and share their experiences and support each other in an informal environment.
Activity session for under 65s
Maidstone. Tel 01622 747181 or email firstname.lastname@example.org
Activity sessions for people aged under 65 who are living with dementia take place at Maidstone Leisure Centre on the 2nd and 4th Friday of the month, 10.30am-midday. Costs £2 per session.
Sheppey. Email Sheran Mozesh (facilitator) email@example.com
The Dynamos club is run by Age UK Sheppey and is a group for people with young onset dementia who are typically aged 65 and under at diagnosis. The club is held at Age UK Sheppey, Rosemary House, Sheerneess from 10am–3pm and includes a two course hot lunch, tea, coffee and biscuits. The club is currently closed due to the Coronavirus outbreak but runs an online session every other Thursday afternoon at 2pm. The aim of the club is to encourage participation in purposeful activity to develop and maintain active minds and bodies, provide a good social atmosphere with people with similar needs and to provide peer support.
Canterbury & Coastal Community Mental Health Team
Canterbury. Tel 01227 812054
Provide services for people living with young onset dementia.
Forget Me Nots
East Kent. Tel 01304 216625
An active group of members, meets monthly to discuss issues relating to dementia.
Embrace the Day Group
Sittingbourne. Tel 07770 325183 or 01795 438446
The group is based at the Swale Community Centre and meets on the first Thursday of the month, 6.30-8pm
Dartford, Gravesham and Swanley. Tel 01474 533990 or email firstname.lastname@example.org
Monthly peer support group for people diagnosed with dementia or living with cognitive problems under the age of 65. Open to anyone in or out of the area.
West Kent & Medway. Tel 01622 726899
A network of people diagnosed with dementia in the West Kent & Medway area, hoping to raise the standards of services across Kent.
Dover, Deal & Shepway. Tel 01304 216626
Dementia involvement group which uses members own experience, skills and knowledge to help inform, shape the development of services for people with dementia. Meets monthly.
The Monday Club
Oxford. Tel 01865 749349
This group is no longer young onset-specific but younger people are welcome to attend. Run by Daybreak, the group meets every Monday between 10am-3pm. Local transport can be provided.
Young Dementia Oxfordshire
Oxfordshire. Email email@example.com
Formerly part of YoungDementia UK, now a service provided by Dementia UK. Provides information and support to people living with young onset dementia and their family members and an active programme of groups. Find out more here.
London (South West) Young Onset Evening Carers Support Group
Richmond. Tel 020 8036 9570 or email RichmondServices@alzheimers.org.uk
Carers support group for family members of people diagnosed aged under 65, meets on the 3rd Wednesday every month between 6.30-8:00pm. Group currently runnng via zoom.
London (South West) Young Onset Evening Peer Support Group
Richmond. Tel 020 8036 9570 or email RichmondServices@alzheimers.org.uk
Peer support group for people diagnosed aged under 65. Group currently running via zoom. Contact us for more infomation.
Surrey Heath Pilot Project
Surrey Heath area. Email firstname.lastname@example.org
Post-pandemic the service will include activity sessions and groups for people diagnosed with dementia age 65 and under, carer support groups and education sessions. For now, the service is being delivered via virtual groups, telephone calls and one to ones, as appropriate.
Young Onset Dementia Support Group
Frimley, Surrey. Tel 01276 454100 or email email@example.com.
The support group meets on the first Wednesday of every month from 2.00–4.00pm at Theta in Frimley, Surrey and is facilitated by the Surrey Heath Community Mental Health Team for Older Persons (Surrey & Borders Partnership NHS Trust). The group was originally set up for residents of the Surrey Heath area but now anybody living with a diagnosis of young onset dementia in Surrey is welcome as long as a professional referral is made and people are able to travel to Theta. The group provides peer support for people with young onset dementia and their families and supporters. A guest speaker is usually arranged for the first hour and during the second hour there is an option for carers to meet separately.
Young onset dementia service
Surrey & borders
A small team which works across each Community Mental Health Team for Older People in Surrey & Borders Partnership NHS Foundation Trust. They offer support and guidance to people with young onset dementia and their family members / carers who have been referred to us by their GP. They offer one to one support throughout and after your diagnosis.
West Sussex. Tel 01273 494300 or email firstname.lastname@example.org
Know Dementia is a Sussex based charity providing advice and support to people living with dementia and their family members/carers. Much of the support is provided through our Memory Moments Cafes, our Sporting Moments session and our Singing and Musical Moments.
Balcombe, West Sussex.
Tel 07769 578891 or email email@example.com
Neil’s Club meets weekly on Thursdays 10.00am-4.00pm and is managed by local charity Crossroads Care. They offer active days out with friendly and experienced care workers. During the Covid-19 pandemic, meetings at Neil's Club are provided via an online virtual group, private Facebook group, welfare check calls and referring members for their home respite if required.
The New ones on the Block
West Sussex. Email Tim.Wilkins@alzheimers.org.uk
An online group for people with young onset dementia who live in West Sussex and are keen to be involved in discussions on a number of different topics. The group meet on the second Monday of each month on Zoom.