If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are attended by younger people with dementia.
Younger Onset Dementia Activity Group
Luton. Tel 01582 470910
Group for people under 65 on diagnosis, including advice and support for carers and children. Meets on the 3rd Friday of the month at Hope Church Centre, Luton. There is also a social activity group meeting on the 1st Monday of the month.
Alzheimer's Posterior Cortical Atrophy (PCA) Support Group
Wokingham. Email email@example.com This regional group, in partnership with Younger People With Dementia, provides support and information to people living with Posterior Cortical Atrophy (PCA), their families, friends, and carers. Meetings have moved to an online format and everyone is welcome. The next meeting is on Friday, 16 October 2020 from 11:00 am - 12:30 pm.
Crossroads Care - Hazelwood Club
Reading. Tel 0118 945 4209
Provides social day care opportunities for younger people with dementia.
Hazelwood Day Centre
Reading. Tel 0118 960 5959
Provides mental health assessments and ongoing care for people of all ages who have dementia or other mental health conditions such as depression, psychosis and severe anxiety.
Young At Heart Peer Support Group
Maidenhead. Tel 01628 626331
Weekly activity group for people affected by dementia, every Thursday 10.00am-12.30pm.
Younger People with Dementia (Berkshire) CIO
Berkshire, also including Bracknell, Slough and Windsor & Maidenhead. Tel 07500 806385
Provide one to one support and a wide range of daytime activities for younger people with dementia as well as workshops / training and carer support groups.
All Hands On Deck
Milton Keynes. Tel 01908 232612 or email firstname.lastname@example.org
All Hands On Deck is a group run by the Alzheimer’s Society for younger people with dementia. The group meet fortnightly on a Monday afternoon between 2-4pm and is service user led. Attendees choose and plan with support the activities they would like to participate in. The group enables peer support and promotes independence, former attendee Nick (age 60) said about the group, 'Keeping active Is so important to me, having gained such a wonderful group of friends you feel involved and never lonely.' Examples of activities are ten pin bowling, walks, quizzes, crazy golf, museums, farms, crafts, relaxation and sensory sessions. The group helps younger people with dementia to maintain skills and remain active.
Buckinghamshire Mind has relaunched Care in Mind, a service to help those diagnosed with young onset dementia and their family members. Care in Mind is a six week course, that is available free of charge across Buckinghamshire, funded by HEETV. The course will create a safe space for people with young onset to meet others with the diagnosis and share experiences, enhance their self-esteem, increase social contact and build a sense of purpose back in their lives. Contact Lizzie Dick on 07944 309414 or email@example.com
Horses Helping People Dementia Group
Mentmore. Email firstname.lastname@example.org
Free countryside activity and support group for people living with dementia and their family members / carers. Meets on Tuesday's between 10.00am-12.30pm and offers a range of activities including gardening, nature walks and looking after animals.
Carers Bucks - Hazlemere Young Onset Dementia Group
Hazelmere, High Wycombe. Contact via email.
Group for carers of people who have young onset dementia. Meets at 10.30am-12 noon on the second Tuesday of the month.
Milton Keynes Memory Assessment Service
Milton Keynes. Tel 01908 254322
Offers assessment of an individual’s memory, ensuring that if dementia is an issue a diagnosis is given as soon as possible. Following diagnosis they offer support, education, information, group and individual sessions and support for carers.
Young People With Dementia - Milton Keynes
Milton Keynes. Tel 07927 965573 or email email@example.com
Young People With Dementia - Milton Keynes is a group for people under 70, living in Milton Keynes who have dementia. They meet on a regular basis to socialise and do activities.
Essex Dementia Care
Tel 01245 363789
Offer one to one support for people aged under 65, plus have activity centres (not under 65 specific) in Braintree, Chelmsford and Southend-on-Sea.
Basildon. Tel 01702 546476
A day centre facility in Basildon for people between 40 and 70 years of age, living with all types of dementia, operates week days from 8.30am-4.30pm. The day centre offers a door to door service in south-east Essex, bringing members to the day centre where they can enjoy mentally, physically and socially stimulating activities. They also offer a free advocacy service and carers support groups for families and carers. They cover Southend and surrounding areas, Castle Point and Rochford, Rayleigh, Basildon, Wickford, Brentwood, Billericay and Thurrock. Click here to download their latest leaflet.
Young Onset Group West Essex
Epping. Tel 01279 427522
Activity group for people under 65 who have dementia. Meets every Friday at St Margaret's Hospital, Epping from 10am-4pm.
The Young Ones
Clacton-on-Sea. Tel 01255 47465
A friendly, active group for people aged under 70 that provides support to visit places of interest and other outdoor and indoor activities.
Wessex Cognitive Disorders Service
Southampton. Tel 023 8120 8998
The team provide specialist diagnosis and treatment for people with cognitive disorders, with a focus on complex, younger-onset and atypical dementias. They conduct research trials in a range of neurodegenerative conditions including Alzheimer's disease, frontotemporal dementia and Huntington's disease.
The Saturday Club
Cosham. Tel 023 928 92035
Young onset activity group, meets on the 1st and 3rd Saturday of the month.
Age UK Young Onset Dementia Support & Groups
County-wide support and groups. Tel 0300 123 4044.
Age UK has a Young Onset Dementia Support Worker who can provide information and advice, group activities and one to one support for people aged under 65 who are living with dementia or cognitive impairment.
Hatfield - Carers support group. Meets on the 2nd and 4th Monday of the month, 3.30pm-5.30pm
Hemel Hempstead - 3rd Tuesday of the month, 2.00pm-4.00pm
Hertford - 2nd Wednesday of the month, 10.00am-12.00pm
Letchworth - 1st and 3rd Friday of the month, 11.00am-1.00pm
Watford - last Thursday of the month, 11.00am-1.00pm
There is also an activities group that meets on the 3rd Thursday of the month, between 10.00am-12.30pm for an outing or entertainment.
Hertfordshire County Council
Peer support groups and activity groups for people with young onset dementia and their carers.
Turning Point - Herfordshire Carers Support Service
Watford, Three Rivers & Hertsmere. Tel 01438 724995
Service provides short periods of respite to carers of people with young onset dementia.
Young Onset Dementia group
Mill Hill, Barnet. Tel 0203 725 3001 or email firstname.lastname@example.org
Held at Ansell Court, 4 Milespit Hill, London, NW7 2FH. The group meets at the venue from 2.00pm-4.00pm on the fourth Wednesday of the month. The group is a mixed activity and peer support group, but the direction is peer-led. It is not a staff-supported service and may be most suitable for people to attend with a family member or carer.
Young onset dementia support group
West Herfordshire. Tel 01923 894222
Tuesday-Friday, 9am-5pm, an opportunity for carers to meet others and share their experiences and support each other in an informal environment.
Activity session for under 65s
Maidstone. Tel 01622 747181 or email email@example.com
Activity sessions for people aged under 65 who are living with dementia take place at Maidstone Leisure Centre on the 2nd and 4th Friday of the month, 10.30am-midday. Costs £2 per session.
Canterbury & Coastal Community Mental Health Team
Canterbury. Tel 01227 812054
Provide services for people living with young onset dementia.
Forget Me Nots
East Kent. Tel 01304 216625
An active group of members, meets monthly to discuss issues relating to dementia.
Embrace the Day Group
Sittingbourne. Tel 07770 325183 or 01795 438446
The group is based at the Swale Community Centre and meets on the first Thursday of the month, 6.30-8pm
Dartford, Gravesham and Swanley. Tel 01474 533990 or email firstname.lastname@example.org
Monthly peer support group for people diagnosed with dementia or living with cognitive problems under the age of 65. Open to anyone in or out of the area. For more information please visit their Service showcase page here.
West Kent & Medway. Tel 01622 726899
A network of people diagnosed with dementia in the West Kent & Medway area, hoping to raise the standards of services across Kent.
Dover, Deal & Shepway. Tel 01304 216626
Dementia involvement group which uses members own experience, skills and knowledge to help inform, shape the development of services for people with dementia. Meets monthly.
The Monday Club
Oxford. Tel 01865 749349
This group is no longer young onset-specific but younger people are welcome to attend. Run by Daybreak, the group meets every Monday between 10am-3pm. Local transport can be provided.
Oxfordshire. Tel 01993 776295
Provides information and support to people living with young onset dementia and their family members and an active prograamme of groups. Find out more here.
Brightwell Cafe & Activity Group
Woking. Tel 01483 488222
The Brightwell Café is a monthly dementia café for people with young onset dementia. The Brightwell Activity Group, monthly activity group for people with young onset dementia. For residents of all boroughs of Surrey. Meets on the second Thursday of every month 2-4pm at Hoebridge Golf Centre, Old Woking Road, Woking, Surrey GU22 8JH.
London (South West) Young Onset Evening Carers Support Group
Mitcham. Tel 020 8687 0922
Carers support group for family members of people diagnosed aged under 65, meets monthly on Thursday's between 6.30-8:00pm. For more information click here.
London (South West) Young Onset Evening Peer Support Group
Mitcham, Merton. Tel 020 8687 0922
Peer support group for people diagnosed aged under 65, meets monthly on Thursday's between 6.30-8:00pm.
Young Onset Dementia Support Group
Frimley, Surrey. Tel 01276 454100 or email email@example.com.
The support group meets on the first Wednesday of every month from 2.00–4.00pm at Theta in Frimley, Surrey and is facilitated by the Surrey Heath Community Mental Health Team for Older Persons (Surrey & Borders Partnership NHS Trust). The group was originally set up for residents of the Surrey Heath area but now anybody living with a diagnosis of young onset dementia in Surrey is welcome as long as a professional referral is made and people are able to travel to Theta. The group provides peer support for people with young onset dementia and their families and supporters. A guest speaker is usually arranged for the first hour and during the second hour there is an option for carers to meet separately.
Young onset dementia service
Surrey & borders.
A small team which works across each Community Mental Health Team for Older People in Surrey & Borders Partnership NHS Foundation Trust. They offer support and guidance to people with young onset dementia and their family members / carers who have been referred to us by their GP. They offer one to one support throughout and after your diagnosis.
West Sussex. Tel 01273 494300
Providing education, advice and support to families affected by dementia in the community including younger people diagnosed with a dementia.
Haywards Heath / Balcombe, West Sussex.
Tel 07769 578891 or email firstname.lastname@example.org
Neil’s Club meets weekly on Thursdays 10.00am-4.00pm and is managed by local charity Crossroads Care. Alternating Haywards Heath and Balcombe, they offer active days out with friendly and experienced care workers. Contact coordinator Stephen Barnett for an informal chat about the group.
The Centre Club
Worthing, West Sussex. Tel 01903 262666
Day centre run by the Alzheimer's Society for people with young onset dementia on Stone Lane, Worthing. Open on Tuesdays and Thursdays, 9.30-4.00pm.