If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
Devon & Cornwall
Devon & Cornwall FTD Carers Support Group
For people who live with or care for a family member with frontotemporal dementia (FTD), bv-FTD or PPA. Meet approximately every 8 weeks at the Arundell Arms, Devon, PL16 0AA for a light lunch, support and laughter.
Memory Matters Young Onset Group
Plymouth. Tel Anne Smith on 01752 243 333 or email email@example.com
A group for people under the age of 65 living with dementia and their supporting family members. It meets on the 2nd Saturday of each month from 10.00am. to 1.00pm at Memory Matters (upstairs from the Moments Café), 69a New George Street, Plymouth PL1 1RJ. The group enjoys peer support, information exchange, fun, learning opportunities and sometimes social activities and provides a relevant voice to shape local services. The session also includes some separate time for members and family. Group and refreshments free of charge.
Bi-monthly carers group
Poole. Tel 01202 705568.
A bi-monthly meeting for family members / carers of a person with young onset dementia giving an opportunity to join in discussion and exchange of experience over tea and biscuits with a member of the Community Mental Health Team. The meetings take place at the Haymoor Day Hospital in the grounds of Alderney Hospital, Poole on the following dates: Saturday 7 September 2019 2pm to 4pm and Saturday 9 November 2019 2pm to 4pm. Covers all of Dorset.
Bournemouth Under 70s Group
Bournemouth, Poole. Tel 01202 764352
For young people living with dementia / family members. Social dinners held on Thursday evenings at 7pm in a variety of locations. Or for group activities and trips, tel 01202 575973.
Coastal Catch Up
West Bay, Dorset. Tel 07525 824899
For people under 65 who are living with dementia, an opportunity to catch up over coffee and cake and take a walk along the beautiful Jurassic coast.
West Dorset Under 70’s Group
West Dorset. Tel 01202 764352 or email firstname.lastname@example.org
Group for people with young onset dementia and family members. Meets every two weeks on the 2nd and 4th Wednesday of the month for coffee and local trips.
Gloucestershire Young Onset Dementia Activity Group
Gloucester. Tel 01452 525222
Structured regular activity based support group for younger people with dementia and their carers. Meets from 11.30am-1.30pm on the last Wednesday of each month. Facilitated by Alzheimer's Society.
Young Onset Dementia Carers Online Support Group
Gloucester. Tel 0800 694 8800 or email email@example.com
The online group takes place monthly on a Tuesday evening and aims to provide a space for family carers to meet one another, share experiences and to get information and support. Click here for more information.
North Somerset. Tel 01278 663927 or ermail firstname.lastname@example.org
A small, friendly social / activity group for people aged under 70 and living with dementia. Meets every other Wednesday from 11am-2pm.
Bath & north east Somerset. Tel 0800 0388 885
Provide support to unpaid carers of people with young onset dementia both within the community and in hospital.
Wiltshire. Tel 01225 776481
An independent charity providing practical services to people living at home with dementia and to their family carers, providing services to people with or without a diagnosis of dementia.
Forget me not
Swindon. Tel 01793 436775
A group in Swindon made up of people with dementia under the age of 65 who come together for peer support and social activities as well as raising awareness about dementia with professionals and in their communities.