If you know of any young onset dementia services that we have not included, or know of any changes to the services we have listed, please email us.
Please note - due to the coronavirus situation, most service providers are not currently able to offer face to face support. They may still be offering support via email and telephone and some have moved their groups online in order to comply with social distancing rules. Some services have temporarily ceased operating. We apologise if the information provided is out-of-date.
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia. Whilst not young onset specific, many of the DEEP groups are well attended by younger people with dementia.
tide (together in dementia everyday)
tide offer a number of online groups to help keep carers connected. Their UK-wide young onset carers group meet (virtually) on the first Tuesday of every month at 10am. They provide a safe space for family carers to share their experiences. The group is free to attend for tide members.
East Yorkshire / East Riding
Hull & East Riding. Tel 01482 211255
North & North East Lincolnshire Dementia Adviser Service
North and North East Lincolnshire, including the area south of the Humber. Tel 01472 359247 or Referrals_NELincs@alzheimers.org.uk
Supporting people of all ages with person centred, tailored advice, support and guidance. The dementia adviser team work across the whole of North and North East Lincolnshire.
Botton Village Dementia Support
Danby, Whitby. Tel 01287 661208 or email firstname.lastname@example.org
Offer a range of dementia support initiatives including a weekly walking group, social farm and dementia friendly cinema. Transport and taster sessions can be arranged.
Ripon & Harrogate district. Tel 01765 601224
Working with people of all ages and have specific support for those under the age of 65 years.
Younger People With Dementia
York. Tel 01904 567701 or email email@example.com
The group is for people aged under 65 and meets on the last Wednesday of the month, 2.00-3.30p,m. It provides an opportunity for people to meet others who may be going through similar experiences and to find out about other sources of information and support. People with dementia are welcome to attend with a carer or on their own.
Sheffield. Tel 0114 2768414
Day support and home support services for people with young onset dementia. Day centre open Monday-Friday, people can attend for either a full or half day. The home support team offer three hour long visits, seven days a week, 7am-11pm to enable people with dementia to get out and access activities in their local community. In January 2016, the registered homecare service was rated as outstanding after a CQC inspection.
Frontotemporal Dementia Carers Group
Sheffield. Tel 0114 258 0482 or email firstname.lastname@example.org
Group for people who care for someone with frontotemporal dementia (FTD), set up by two brothers with personal experience of caring for their mum who had young onset FTD. Meets in the community room at Heeley City Farm on the 2nd Tuesday of the month, 6.30-8.30pm. Due to the COVID pandemic, the group is currently meeting virtually via zoom.
Sheffield. Tel 0114 327 9727 or email email@example.com or facebook here
A twice weekly gathering for people affected by young onset dementia and their family members. Meets on Monday and Friday, 9.30am-11.30am. Due to the COVID pandemic, some groupd have been cancelled and some have moved to zoom.
Young onset dementia service
Doncaster. Tel 01302 796080
The service aims to support younger people with dementia who develop the illness before the age of 65 and their families.
Young onset dementia service
Rotherham. Tel 01709 302955
The Young Onset Dementia Service provides support to younger people who develop dementia before the age of 65. It provides assessment or psychological, social, physical and functional issues, alongside providing practical support for individuals and their carers.
Young Onset Friends Sheffield (YOFS)
Sheffield. Email firstname.lastname@example.org
A young at heart group, YOFS is run by people affected by dementia for people affected by dementia. YOFS operates a variety of different meet ups including: film club, art group, craft sessions, as well as one of trips to places in and around Sheffield. Carers can connect virtually in our closed Whatsapp group as well as at our monthly carer meet up. The group works with Sheffield organisations to start new things, put on dementia friendly events and to campaign for better accessibility and dementia awareness. YOFS is open to new people and new ideas, please get in touch.
Young Onset Dementia Activity Group
Sheffield. Tel 07972 200233 or email email@example.com
A monthly peer support and activity group for people affected by young onset dementia. Due to the COVID pandemic, the group is currently running via zoom.
Young Onset Dementia Service
Rotherham. Tel 01709 447767
Rotherham Young Onset Dementia Service provides support to younger people who develop dementia before the age of 65. It provides assessment or psychological, social, physical and functional issues, alongside providing practical support for individuals and their carers..
Bridge House Day Centre
Brighouse. Tel 01484 905111
Sessions run on Monday's from 9-6pm. The current fee is £50 which includes activities within the centre and meals. Trips out of the centre can sometimes incur an additional charge.
Cambridge Road Café Group
Huddersfiield. Tel 01484 519988. Email Deborah.firstname.lastname@example.org
The group is based in the Chinese Community Centre on Claremont Road adjacent to the Cambridge Road car park, close to the town centre in Huddersfield. The group is open from 12 noon to 4pm and offers a once weekly activity centre / social centre / café style environment, as the project grows they will be extending the range of services on offer and the times for providing them. A modest fee is charged for session attendance and to cover the cost of refreshments and a light meal, sandwiches or similar.
Bradford. Tel 07917 751478 or email email@example.com
A support group for people affected by young onset dementia) in the Bradford District. They meet on the first Tuesday of each month from 6.30–8.30pm and provide information, contact and support in a non judgemental, supportive, fun environment. They have regular speakers and activities as well as a chance to chat to others in a similar situation. They also have social outings and an annual supported holiday.
The Younger People with Dementia Team
Leeds. Tel 0113 8555018
The Younger People with Dementia Team provides assessment, diagnosis, treatment and support to younger people experiencing dementia and their families. The community service is provided city wide in Leeds. The team is made up of doctors, nurses, a social worker, an occupational therapist, and psychologist. The team work closely with the Young Dementia Leeds Hub, Leeds branch of the Alzheimer’s Society and Leeds City Council Dementia initiatives, including the Peer Support Network. They also offer a carer’s support group which meets every six weeks, on a Tuesday evening at 6.30pm till 8pm at St Mary’s Hospital . New members are very welcome.
Young Dementia Leeds
Leeds. Tel 07495 263791 or 0113 3804300 Email YoungDementia@commlinks.co.uk
The service is a partnership between Community Links and Carers Leeds and offers a range of wellbeing, holistic, mutual and peer support, connecting people to groups and activities within their community helping people to live well with dementia. The community based service offers 1:1 support or small group activities offering a short break for family and carers. Carers Leeds provide specialist support for carers of people with dementia, offering carers peer and social groups along with signposting and advice for the families and carers. The Young Dementia Leeds Hub offers day respite for younger people living with dementia, providing a structured programme of activities, taking a more creative, less traditional approach to day care.
Young Onset Dementia & Alzheimer's Group (YODA)
Halifax. Tel 07590 831791 Email YODAhalifaxUK@gmail.com
A group for people living with young onset and their family members, a chance to get together for a cuppa and a chat. Due to the impact of the COVID pandemic they are not able to meet as a group, but have an active facebook community offering support to people living with young onset dementia, their families and friends. They maintain a rich vein of partnership working with other dementia organisations both nationally and internationally and promote empowerment, the involvement of dementia voices and remain available to meet with individuals and groups (when safe to do so).