Young Dementia 2014 presentations

Presentations from our conference A Life Worth Living: Young Onset Dementia Services and Support are available to download.  

The conference at St Hugh’s College, Oxford on 30th September 2014 organised in partnership with the Journal of Dementia Care, focused on presenting services that work well with and for people living with young onset dementia and their families, and initiated ideas for national changes to achieve together.

To download the presentations, please click on the links below.

Ken Howard, media ambassador, living with and fighting dementia as a way of life, Coventry
This links to a page on the Whose Shoes website, where Ken's presentation was used as a guest blog.  You can watch Ken's film shown at the conference here.

Christian Bakker, Healthcare Pyschologist, Florence Centre for Specialised Care in young onset dementia, the Hague, Netherlands

Jenny La Fontaine, Young Onset Dementia Development Officer, Worcestershire Health and Care NHS Trust

Rikki Lorenti, Young Onset Dementia Admiral Nurse, Younger People with Dementia, Berkshire West 

Jenny McNeill, wife of Dave who is living with young onset dementia and receives support from YoungDementia UK.

Lynda Hughes, Manager, Forget Me Not Centre, Avon & Wiltshire NHS Trust

Karim Saad, Consultant Psychiatrist, Coventry & Warwickshire Partnership Trust; Clinical Director, NHS Commissioning Board

Dr Sarah Green, owner and researcher, Merevale House,  Atherstone, Warwickshire

The Dementia Enagement & Empowerment Project workshop for people with dementia asked the following questions.  What are the issues facing younger people with dementia?  What are their priorities for action?  You can read the group's answers in this document.  

Their thoughts and suggestions will be taken forwards by a newly formed young onset dementia steering group, due to meet in early December 2014.  This group will in turn feed into a developing national network of people with a personal or professional interest in young onset dementia. 

Press coverage from the conference includes the two articles below.  

Nobody can know what it is like to live with young onset dementia. It is bloody awful

Number of middle-aged people with dementia on the rise yet care homes not equipped to cope

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